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Giving HOPE to patients and families in need!
Our Inspiration: Evan Cousineau
Nine-year-old Evan Cousineau was a vibrant three-sport athlete when he was diagnosed with a genetic metabolic disease.  Our lives were turned upside down on May 1, 2007 when we were told that Evan had NO HOPE. Because of our "Fight for Evan", we now fight for every patient and family in need by raising awareness and helping educate the nation about donation in all capacities, so we all have HOPE!!




    > All Events
August Totals
August: 10
2010: 3,171
Online "Be The Match" Registry
Join "Online" now with the      
Be A Hero Become A Donor Foundation

Click here to join the registry online.  When prompted, please use our promo code "BAHBAD" and consider making a contribution of any amount toward the $100 tissue typing fee.  You will fill out consent form online and a cheek swab kit will be mailed to you.
September 7 - American Red Cross Blood Drive & Marrow Registry, Costa Mesa, CA
Orange Coast College
2701 Fairview Rd.
Costa Mesa, CA 92628-5005
9am-3pm, in the Quad Area
 
September 8-9 - American Red Cross Blood Drive & Marrow Registry, Fullerton, CA
California State University Fullerton
800 N. State College Blvd. ,
Fullerton, CA 92831-3599
PARKING INFORMATION  http://www.fullerton.edu/campusmap/ 
Parking Information Center Arts Drive
(on campus, east of the intersection of Arts Drive & State College Blvd.)
9am-3pm - Volunteer & Service Center- bloodmobile
September - American Red Cross Blood Drive & Marrow Registry, Riverside, CA
University College Riverside
Date & Time TBA
September - American Red Cross Blood Drive & Marrow Registry, Norco, CA
Riverside Community College- Norco
Date & Time TBA
September 12 - Marrow Registry, Minneapolis, MN
 Hope Kid's Festival
12-4pm
University of Minnesota,
Bierman Athletic Field
September 14-15 American Red Cross Blood Drive & Marrow Registry, Walnut, CA
MT. SAN ANTONIO COLLEGE
1100 N. GRAND AVENUE,
WALNUT, CA 91789
9am – 7pm, Student Life Center, Room 9C
September 16 - Marrow Registry, Commerce, CA
The City of Commerce 
fourth annual Employees Health
and Benefits Open Enrollment Fair
9:00 a.m. to 11:00 a.m.
September 21&22 - American Red Cross Blood Drive & Marrow Registry, Mission Viejo, CA
Saddleback College 
28000 Marguerite Parkway
Inside - 8am-8pm 
September 25 - Marrow Registry, San Clemente, CA
Character Counts Festival
11-4pm
Be The Match Registry
Vista Del Mar School
September 27-30 American Red Cross Blood Drive & Marrow Registry, Fullerton, CA
 California State University Fullerton
800 N. State College Blvd. ,
Fullerton, CA 92831-3599
Parking Information Center Arts Drive
(on campus, east of the intersection of Arts Drive & State College Blvd.)
9am-3pm -  inside Pavilion A
Hosted by the Student Health Professionals Association
September 29-30 American Red Cross Blood Drive & Marrow Registry, Pomona, CA
Cal Poly Pomona
3801 West Temple Avenue
Pomona, California 91768
9am – 3pm.
The drive will be held at the
Bronco Student Center at URSA Major C.
Bone Marrow Drive for Lion King Star
 
NMDP Partners to Raise Awareness for Cord Blood
July 13, 2010
The National Marrow Donor Program (NMDP), in partnership with the Congressional Black Caucus Foundation (CBCF), is celebrating African American Bone Marrow Awareness Month throughout July to raise awareness about the critical need for African Americans to join the national registry, publicly known as the Be The Match Registry®. Every year, more than 10,000 patients in the United States are diagnosed with life-threatening diseases for which the best option for a cure can be a bone marrow transplant from an unrelated donor or donated cord blood unit. Approximately 70 percent of patients in need of transplant do not have a matching donor in their family. Patients are most likely to match with a donor who shares a similar racial or ethnic background, therefore making it incredibly important to diversify the registry. The majority of patients in need of potentially life-saving bone marrow or cord blood transplant depend on the national registry for a match. This month the NMDP and CBCF are calling attention to the fact that only 7 percent of the 8 million potential donors on the national registry are African American. Fewer potential African American donors mean fewer potential matches for African American patients seeking transplant. The NMDP is committed to increasing the number of potential donors and diversifying the national registry to ensure that all Americans have access to a match. “We are happy to partner with the NMDP to build public awareness about the importance of African Americans serving as bone marrow donors,” said Elsie L. Scott, president and chief executive officer for the CBCF. “When we talk about health disparities, this is one that is easily solvable by signing up as a donor.” As part of African American Bone Marrow Awareness Month, the NMDP is sponsoring bone marrow donor registration drives during the month of July. At the NMDP and CBCF events, attendees will hear from their U.S. Representatives about the need to grow and diversify the national registry of adult donors, learn more about the NMDP and find out how they can help save a life by joining the national registry. In addition to raising awareness about bone marrow donation, community members expressed support for efforts to grow and diversify the national registry through reauthorization of the C.W. Bill Young Cell Transplantation Program (Program) and the National Cord Blood Inventory (NCBI). In 2005, Congress passed the bipartisan Stem Cell Therapeutics and Research Act, which created the Program and the NCBI and provided federal funding for the expansion of the national registry. The Program and the NCBI will expire this year and must be reauthorized by Congress to provide continued funding to maintain and expand the national registry. Without additional funding, recruiting adult donors to join the national registry continues to be a challenge. The NMDP is currently working with Congress to secure vital funding for the Program to ensure every American in need has access to a potentially life-saving match. “Growing the national registry starts with volunteers in communities across the country,” said Jeffrey W. Chell, M.D., chief executive officer of the NMDP. “Patients in need of transplant rely on donor drives to expand the registry so that their chances of finding a potentially life-saving match increase. As growing numbers of Americans are in need of transplant, expanding and diversifying the registry is critical, which is why reauthorization of the Program and the NCBI is so urgent.”
"Gimme a minute..." with Marla
check it out -a 1 minute video, great to share with your friends.
http://vimeo.com/11241149
Comfort Zone Camp ...
Comfort Zone Camp released a survey about the life-long affects of childhood bereavement. CNN.com covered the survey, featuring Comfort Zone camper turned volunteer, turned employee, Elizabeth Sullivan. It was even discussed on Howard Stern this morning. You can help us send the message of how important this issue is by commenting on the story itself. Also, help spread the word by sharing your experiences with Comfort Zone Camp in the comments section. http://www.cnn.com/2010/HEALTH/03/23/child.bereavement.study/index.html
Son of Kings broadcaster lucky for Bone Marrow Match
For Jason Ross, one of the Sacramento Kings broadcasters, respite comes from his son, 7-year-old Jackson Ross.
Read more: http://www.sacbee.com/2010/04/13/2673567/son-of-kings-broadcaster-lucky.html#ixzz0lCsSOd5N
When Families grieve... PBS
This is a good resource for families, especially with small children.
 
MTV - True Life - I need a transplant...
Hearts Helping Hearts
Hospice Campamento de Fe,
 desperately needs medical and Hygene supplies.
contact Donald Glasgow,
Volunteer Mexico Missionary San Clemente
Drug halts ALD !!!
Genetix drug success prompts $35M funding, exec shakeup, hiring plans Mass High Tech:
The Journal of New England Technology
Fri, 12 Mar 2010 05:50 AM PST
Genetix Pharmaceuticals Inc. has raised a venture round of $35 million dollars following the release of data showing that its drug target for a rare disease calledAdrenoleukodystrophy has halted the ailment in all three human cases.
Read More here...
Savannah's dream
“Her dream was to have her own organic ranch some day,” Sachen said. “She was an incredible kid. She was such a wise old soul, very intelligent.” Sachen, of Aliso Viejo, created a foundation called Savannah's Organic Ranch in his daughter's honor and has been planting organic gardens at Orange County schools in her name ever since.
 
Read all about it here:
BE THE MATCH and Shaquille O’Neil are partnering to do something BIG!
Saving a life is worth the pain
By MICHELLE THOMAS
Published March 1, 2010
The Panther, Chapman College
"BAHBAD makes it to european water polo website"
"BAHBAD makes it to european water polo website"
 check out the link !
"Nigerian Winter Olympic hopeful needs bone marrow transplant."
Seun Adebiyi, hoping to qualify for the 2014 games,
was recently diagnosed with rare and aggressive cancer.
He is seeking to recruit 10.000 new potential donors to the national registry.
To hear his story check below...
Trevor's Story on KGO Radio, San Francisco
 A very touching story about Trevor's journey and the need for people to join registry to give HOPE to patients around the world.  Well worth the listen....
 
Largest-ever kidney swap donors, patients meet
WASHINGTON - Thirteen patients with healthy new kidneys from what's believed to be the world's largest kidney exchange met the donors who made it happen Tuesday — including three who are sure to face the question, "Why?"
 
There is comfort in the comforting of others
 Each time Karen Gerstenberger finishes a seam or pins on a binding, she is comforted. Each time she drops off a stack of quilts at Seattle Children’s Hospital, she is comforted. And each time a scared, sick child finds a homemade quilt sitting on a sterile hospital bed, she is comforted. Read more:http://www.kitsapsun.com/news/2009/dec/01/grieving-poulsbo-mom-hopes-others-find-comfort/
December issue of SELF magazine-
The December issue of SELF magazine will feature a four-page, in-depth article on marrow and cord blood donation.  Reporter Sabrina Erderly broadened the focus of a story she was writing about a donor and recipient to include information about cord blood donation. Until she received a cord blood media kit from the NMDP, she was unaware that cord blood could be a source for patients who need transplants. Katie Quinn, a DKMS-Americas donor, donated to leukemia patient Anna Robinson two years ago. 
Read the full article here:
One girls wish for an organ transplant, and how the wish came true.
DonateGames turns used video-games into funding for medical research to help kids. By Michael Lafferty
“There is so much goodness coming with what we are doing” Nothing touches the heart so much as children in need. Jim Carol knows that agony personally. In 2007 his 11-year-old son was diagnosed with Philadelphia Chromosome, a rare form of leukemia. The Carol family did what any family would do – they moved their family from California to Seattle and to a place where their son, Taylor, could get the best care, beginning with a bone marrow transplant. As Jim wrote on the DonateGames Web site: “We ended up living in Seattle Children's Hospital for almost a year during his chemotherapy. Taylor and the other kids at the hospital were terribly sick, scared and isolated, but video-games played a big part in helping them get better.”
 
Gene therapy makes major stride in 'Lorenzo's Oil' disease
An experimental treatment stabilizes two boys with the rare,fatal degenerative disorder known as ALD.
Researchers hail the findings, which come on the tail of other gene-therapy successes.
 
By Thomas H. Maugh II    November 6 2009
 
In the third gene-therapy success of recent weeks, French researchers have arrested the progression of the rare and fatal degenerative disorder adrenoleukodystrophy,
which was at the heart of the popular movie "Lorenzo's Oil."
 
The disease has stabilized in two boys who were 7 years old when the therapy was performed two years ago, the team reported today in the journal Science.
 
The complete article can be viewed at:
A Double Blessing: Bismarch Tribune
While this article was written in 2006, the facts about cord blood and the gift it can give to save lives remains the same.
Donating Bone Marrow, Saving Lives: CNN
After a man donates his stem cells, his company takes on task of bringing more people to the registry.





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